Research projects that develop perpetual community resources to support research, such as HapMap, UK Biobank and IGSR, play an increasingly important role in biomedicine. NCIG is establishing a resource of genome sequence data and related samples and records from Indigenous Australians. It is one of many community resource projects around the world that aim to ensure broad representation of the world's populations to ensure that the benefits of genomics are extended to all humans, irrespective of their ancestry. In the current era of "genomical" scale data and the availability of advanced machine learning techniques, resources such as NCIG needs to be appropriately managed to extract maximum value for all stakeholders. Towards that end, we are creating data repository in partnership with Nation Computational Infrastructure (NCI). This dynamic data repository integrates with biospecimen repository and in the future to be integrated with NCI's computational resources. NCIG, through this repository, will provides the essential link between Indigenous communities and research communities that is needed for sustainable benefit and capability development in both. Our data repository will ensure that the NCIG Collection is managed in line with governing principles and policies established by the Governance Board. Strong Indigenous governance ensures excellence in standards required for research involving Indigenous people and their involvement throughout the research life cycle. Enduring community engagement and partnerships that ensure a persitent connection between communities and the collection is at the heart of NCIG's operations.
Research projects that develop perpetual community resources to support research, such as HapMap, UK Biobank and IGSR, play an increasingly important role in biomedicine. NCIG is establishing a resource of genome sequence data and related samples and records from Indigenous Australians. It is one of many community resource projects around the world that aim to ensure broad representation of the world's populations to ensure that the benefits of genomics are extended to all humans, irrespective of their ancestry. In the current era of "genomical" scale data and the availability of advanced machine learning techniques, resources such as NCIG needs to be appropriately managed to extract maximum value for all stakeholders. Towards that end, we are creating data repository in partnership with Nation Computational Infrastructure (NCI). This dynamic data repository integrates with biospecimen repository and in the future to be integrated with NCI's computational resources. NCIG, through this repository, will provides the essential link between Indigenous communities and research communities that is needed for sustainable benefit and capability development in both. Our data repository will ensure that the NCIG Collection is managed in line with governing principles and policies established by the Governance Board. Strong Indigenous governance ensures excellence in standards required for research involving Indigenous people and their involvement throughout the research life cycle. Enduring community engagement and partnerships that ensure a persitent connection between communities and the collection is at the heart of NCIG's operations.
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